I am so happy to report that we received good news today! Praise God! He fearfully and wonderfully made our little girl and in His sovereignty knitted her together in a unique way. She indeed has Congenitally Corrected Transposition of the Great Arteries but does not have an identifiable VSD and a very small ASD. She also is unique in that she does not have inversion of the ventricles, but rather has inversion of the atria. This lessens the risk of a future heart arrhythmia or heart block. She also has a fully functioning tricuspid valve and no evidence of cyanosis or heart failure.
That's a lot of medical terminology to basically say...in Melia's body two wrongs made a right. All the blood is going in the right direction and she is experiencing no "problems" as a result of her anatomy.
Our doctor, who was FANTASTIC, will present her case to 7 other cardiologists and 3 cardiothoracic surgeons next Monday. They will likely proceed with a cardiac MRI to complete her work-up and then come up with a consensus regarding their recommendations. He was also more than willing to have us pursue getting additional opinions given the complexity of her condition, if we chose to do so.
He told us that his initial thoughts were that he would do nothing. Right now, the risks of a 9 hour, invasive surgery which requires going on the heart/lung bypass machine, for prophylatic treatment, in his opinion, is not advisable. He looked at our active and thriving little girl and basically said that for now her body is operating just fine. He gave us no restrictions for her activity either.
In addition to her heart condition, she also has "flip-flopped" abdominal anatomy. Therefore, he will also consult with general surgeons to get their opinion regarding any need for surgery in the abdominal cavity. Although, once again, everything seems to be functioning just fine right now.
So, we are thankful. Thankful that we don't have to make any quick decisions. Thankful for every day that she brightens our lives with her presence. Thankful for wise advice and access to competent physicians in our hometown. Thankful that for now we do not need to anticipate surgery for our little one.
We will continue to monitor her heart and if the consensus from the Omaha doctors, second opinions outside NE or MRI reveal new information we will consider those things as they come along and pray for God to give us wisdom as we walk this road of Congenital Heart Disease with our daughter.
All smiles after a good report from the doctor today!
Our happy, energetic little girl
(pardon my messy room!)
Thanking God with you...
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